Thursday, August 27, 2015

The Broccoli Story

I am honored to present a Guest Blog by my new friend and fellow, Anna Scott Thorsen.  I loved the way she made the analogy so perfectly descriptive of so many of our experiences with dyslexia's treatment in schools. The following is her original work.  I'm calling it, The Broccoli Story.


I was asked today by someone I admire in [local school district] Special Education Department how I felt my friend's S Team meeting went Tuesday. Here is how I answered:


"Imagine that your beloved 7 year old son has just be diagnosed with cancer by a specialist. It doesn't matter what kind of cancer or how severe. You go your doctor scared and needing help for your ailing child. When you get to the hospital, you are surprised to be met with a room full of experts, but you are just so thankful they will help your poor, sick boy. However, once you walk in, they grab your sweet child and give him a cursory and cold look over. The person who seems to be the head doctor pronounces: "Well, it doesn't look like he has cancer. He is not sick enough to have cancer. We can't treat him." You are left speechless. You know how tired your son has been. You see how he can't keep up with his friends on the playground. Anyone who knew him would know that he is not what he could be. If anyone would look at the tests, the would see it plain as day...cancer. Textbook case. But the doctors refuse to see it, all they see is a boy who looks like all the other boys. He can still walk. He can still talk. He can still stand. You think "What do they mean that he is not sick enough to treat...who will help him if they won't...." But before you get a chance to say those words, your doctor, the one you have known for years, the one who you trusted and were sure would help your son, says slowly and with authority "We are going to give him broccoli. Broccoli helps prevent cancer in lots of children."

Your gut wretches at the absurdity of it. You are left thunderstruck by this response. Finally, your numbness subsides enough for you get your words out..."Broccoli?! My son has CANCER. He has already been diagnosed. He can't run. He can't play. You know perfectly well that the only thing that will save him is chemo!" Your tone and your outrage cause a stir and the doctors mutter amongst themselves and shuffle papers. One, who up until now has not spoken says, "Well, in this hospital, we don't recognize "cancer" so what we are going to do is give your son broccoli. But, because you are so concerned, we will give it to him everyday." Still astonished, you say with all the calmness you can muster "but he already eats broccoli...it hasn't worked. He has cancer. Cancer is a real thing - help him! He can't run, he can't keep up with his friends, he is tired - he needs chemo and you know that. You are DOCTORS for god sakes!"

You are met this time with a condescending and shrill voice that says "Well, maybe you did not give your son enough broccoli. We will give him more. Then, we will wait and see if the broccoli works. If it doesn't work after 8 weeks, will try giving him broccoli in a different way for 10 to 12 weeks. Perhaps, if the broccoli doesn't work after that we can meet again to discuss whether this hospital will do an evaluation to see if he is 'ill'." "Ill!?! Only then will they look to see if he is 'ill'?" Your are dumbfounded. The same shrill voice adds "You are really being unfair not to give the broccoli a chance. It does work for lots of kids, you know. The kids that stick with it eventually don't have to eat the broccoli anymore. That is what you want for your son, isn't it?" By this time, you are hysterical, you shout, enraged, "but the other kids don't have CANCER!" Finally, tired of listening to you, they gather their papers hurriedly and begin to walk out of the door. It seems your meeting is over, as abruptly as it started. On the way out, the social worker from the hospital says over her shoulder in a voice full of scorn "You don't really want your son to be labeled as having 'cancer'...do you?"

There is nothing else you can do. No words to say. It has been decided. You are left to watch over the weeks and months as your son grows weaker and weaker while they, the doctors, stand there and dole out their worthless solution and measure and record and report its lack of affects. They tell you he simply needs to try harder to eat the broccoli, and he will be fine. How can they not see how frail he has become under their "care"? Your heart breaks to see your once strong and healthy son so slow, so weak and so scared. You know he could be saved...you know that they know how to save him....the one thing you can never understand and will never forgive is why they won't."

This seems against science and rationality, but it is what happens to parents of children with dyslexic every single day. Why?

11 comments:

Unknown said...

Excellent analogy for what is happening to our kids with Dyslexia.
Thank you for writing this.

Unknown said...

Just had this experience yesterday.

Anonymous said...

I don't get it, but this is so true, it hurts.

Anonymous said...

Just had this experience with a "leading expert in the field of dyslexia that is world reknown"!!!!!!!! So frustrating! So maddening! Infruriating!

Anonymous said...

We had the same experience with SELPA director. She told us we would not be using THAT word in this meeting.

Anonymous said...

At the beginning of our journey, we were sent to neuropsychologist. After being tested extensively by the Dr., he was diagnosed with, you guessed it, "ADHD"! The Dr. couldn't wait to put my son on medication. I refused and insisted that he be tested for dyslexia. The Dr. was resistant and a little mad. I did not back down, so he scheduled an eval. for my son. Guess what?! Classic dyslexia!

Anonymous said...

Awesome! Thank you!

Anonymous said...

We had this experience in BVSD only a year ago. It seems like we are not the only ones.

Dawn said...

Same thing happens in Canada as well. Was told I don't know how many times "it'll click" in regards to reading and spelling....but as a mom it shouldn't take k-grade 2 to figure it out..3 years of daily instruction and your kid isn't getting it...I knew something was "wrong". Sure enough I had him tested but only after I had called a speech therapist at my wits end asking her for advice. She suggested a psychological educational assessment. The school knows about these, has access to them and they are even free through the school but what they don't tell you is that they exist!! I had to reach my breaking point , grasping at straws to figure out what else we could do. It was pure luck that I called the speech therapist and got that info. I've been tutoring my son since 3rd grade using OG-Barton. He is in 6th grade now and just got 9 A's on his report card. The system is completely broken.

liza said...

nice post

australian writings services said...

I haven't experienced it and I don’t wanna experience it as well. Thank you for sharing your experience with us by sharing this story